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Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences.

Monica E LemmonMary C BarksSarah BernsteinJ Kelly DavisMegan G JiaoErica C KayeHannah C GlassDebra BrandonPeter A Ubel
Published in: Annals of neurology (2022)
In this cohort of infants with neurologic conditions and their parents, we identified salient themes characterizing the content and role of discussion about neurologic outcome. Our findings highlight that prognostic discussion focuses on anticipated impairments, informs decision-making, and helps families prepare for home life. Future work should characterize whether these findings align with parent preferences for prognostic disclosure. ANN NEUROL 2022;92:699-709.
Keyphrases
  • decision making
  • healthcare
  • current status