Login / Signup

Health-Related Quality of Life Assessments by Children and Adolescents with Sickle Cell Disease and Their Parents in Portugal.

Clara AbadessoSusana PachecoMaria Céu MachadoG Allen Finley
Published in: Children (Basel, Switzerland) (2022)
SCD significantly affects children's HRQL. Parents can provide a good proxy report, although both evaluations are beneficial. Disease status, like number of hospitalizations and frequency of pain, influences HRQL. Interventions in SCD should consider improvements in HRQL as an important outcome.
Keyphrases
  • chronic pain
  • young adults
  • pain management
  • physical activity
  • neuropathic pain
  • spinal cord