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Caring for those who care: key challenges and improvement opportunities for health professionals working with children with disabilities.

Larissa Corrêa Manoela MancaAndréa Regina Martins FontesMárcia Regina Neves GuimarãesTiago Fonseca Albuquerque Cavalcanti SigahiPatrícia SaltoratoDaniela da Silva RodriguesMarina Helena Pereira VieiraGeraldo Tessarini JúniorBruno Cesar Kawasaki
Published in: Ergonomics (2024)
This paper investigates the challenges faced by health professionals working with children with disabilities, with the aim of identifying areas for improvement. Employing a focus group method, the study involved knowledge levelling, discussions, problematization, cause formulation, and validation. A diverse team of ten professionals participated, including physiotherapists, speech therapists, occupational therapists, psychologists, nursing technicians, and social workers. Findings reveal organisational inflexibility in appointment scheduling, lack of deadlines affecting case monitoring, and the mental strain of immediate clinical responses. Effective communication and multidisciplinary care emerge as beneficial. Proposed improvements include flexible space utilisation, enhanced room design, structured collaboration training, role clarification, parent partnerships, flexible scheduling, and continuous professional development. This study unveils unique challenges and rewards in the healthcare environment, offering insights into causative factors and practical strategies for enhancing the work of health professionals working with children with disabilities.
Keyphrases
  • healthcare
  • quality improvement
  • young adults
  • palliative care
  • mental health
  • public health
  • gene expression
  • drug delivery
  • dna methylation
  • clinical evaluation