Enablers and barriers to newborn screening for sickle cell disease in Africa: results from a qualitative study involving programmes in six countries.
Natasha M ArcherBaba InusaJulie MakaniSiana NkyaLéon TshiloloVenee N TubmanPatrick T McGannEmmanuela Eusebio AmbroseNatalie HenrichJonathan SpectorKwaku Ohene-FrempongPublished in: BMJ open (2022)
The establishment of enduring NBS programmes is a proven approach to improving the health of populations with SCD. Organising such programmes in Africa is feasible, but initial implementation does not assure sustainability. Our analysis suggests that future programmes should prioritise government partner participation and funding from the earliest stages of programme development.