Coordinating physiotherapy care for persons with haemophilia.

Merel A TimmerJohan BlokzijlRoger E G SchutgensCindy VeenhofMartijn F Pisters

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)

Commitment to a formal network is considered not feasible for a rare disease like haemophilia. Development of a practice guideline, easy-accessible information and contact details, two-way and open communication between HCCC and primary care and criteria to refer back to the HCCC are recommended.

Keyphrases

primary care
healthcare
quality improvement
palliative care
minimally invasive
general practice
health information
affordable care act
pain management
health insurance
social media