German Newborn Screening for Cystic Fibrosis - Parental perspectives and suggestions for improvements.

CF-NBS stands in high regard with parents. Smooth organization, timely initiation of confirmatory testing, and professional communication are most important to limit parental anxiety. A more centralized system of confirmatory diagnostics appears advantageous in several regards as it reduces time from positive NBS to final diagnosis and increases parental satisfaction. This article is protected by copyright. All rights reserved.