Quality of instruments assessing activity and participation of people with muscular dystrophy: A systematic review of participant-reported outcome measures.
Keysy Karoline Souza AndradeLuana A SoaresCaik C MacedoNelcilaine R B GonçalvesRicardo Rodrigues de Sousa JuniorVinicius Cunha OliveiraHércules Ribeiro LeiteThaís Peixoto Gaiad MachadoPublished in: Developmental medicine and child neurology (2022)
There are 28 available instruments for activity and participation of people with muscular dystrophy. The evidence quality is moderate or low because of imprecision and indirectness. The Muscular Dystrophy Functional Rating Scale is the highest quality instrument. The Motor Function Measure is the second most recommended instrument. The Duchenne Muscular Dystrophy Upper-limb Patient-reported Outcome Measure, North Star Ambulatory Assessment, and Myotonic Dystrophy Type 1 Activity and Participation Scale for Clinical Use are also recommended.