Keeping all options open: Parents' approaches to advance care planning.
Emma BeechamLinda OostendorpJoanna C CrockerPaula KellyAndrew DinsdaleJune HemsleyJessica RussellLouise JonesMyra Bluebond-LangnerPublished in: Health expectations : an international journal of public participation in health care and health policy (2016)
This study highlights that parents' approaches to decision making vary by the type of decision required. Their views may change over time, and it is important to allow them to keep their options open. We recommend that clinicians have regular discussions over the course of the illness in an effort to understand parents' approaches to particular decisions rather than to drive to closure prematurely.