Measurement of health-related quality of life in pediatric organ transplantation recipients: a systematic review of the PedsQL transplant module.
Michael O KillianKelli N TriplettSaba S MasoodJason BoehlerGillian S MayersohnPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
With the goal of enhancing and sustaining HRQOL in pediatric organ transplant recipients, the need for a psychometrically valid and reliable measure of transplant-specific HRQOL is apparent. Research on the PedsQL-TM supports the promise of this measure although future efforts should be taken to examine measurement issues such as factor validity and IRR. Assessing transplant-specific HRQOL in these patients is paramount for their care and appropriate decision-making by patients, families, and the transplant team.