Systematic review: measurement properties of patient-reported outcome measures evaluated with childhood brain tumor survivors or other acquired brain injury.
Kim S BullSamantha HornseyColin R KennedyAnne-Sophie E DarlingtonMartha A GrootenhuisDarren HargraveChristina LiossiJonathan P ShepherdDavid A WalkerChristopher MorrisPublished in: Neuro-oncology practice (2019)
Valid and reliable assessment is essential to evaluate impact of ABI on young lives. However, measurement properties of PROMs evaluating HRQoL appropriate for this population require further evaluation, specifically construct validity, internal consistency, and responsiveness to change.