Assessing Patient Preferences in Rare Diseases: Direct Preference Elicitation in the Rare Chronic Kidney Disease, Immunoglobulin A Nephropathy.

Kevin MarshKerrie-Anne HoRachel LoNancy ZaourAneesh Thomas GeorgeNigel S Cook

Published in: The patient (2021)

Direct preference elicitation methods can be used to collect preference data from small samples. Further work should continue to test the validity of the estimate generated by such methods.

Keyphrases

chronic kidney disease
end stage renal disease
case report
electronic health record
big data
machine learning
peritoneal dialysis
data analysis