Systematic review on the use of patient-reported outcome measures in brain tumor studies: part of the Response Assessment in Neuro-Oncology Patient-Reported Outcome (RANO-PRO) initiative.
Linda DirvenMaartje E VosTobias WalbertTerri S ArmstrongDavid AronsMartin J van den BentJaishri BlakeleyPaul D BrownHelen BulbeckSusan M ChangCorneel CoensMark R GilbertRobin GrantRakesh JalaliDanielle LeachHeather LeeperTito R MendozaLakshmi NayakKathy OliverJaap C ReijneveldEmilie Le RhunLarry RubinsteinMichael WellerPatrick Y WenMartin J B TaphoornPublished in: Neuro-oncology practice (2021)
Many different PRO measures assessing symptoms, (I)ADL or HRQoL have been used in brain tumor studies to date. Future research should clarify whether these instruments or their scales/items exhibit good content validity and other measurement properties for use in brain tumor patients.