A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research.
Carolina WannhedenSara RiggareJamie L LuckhausHanna JanssonMy SjunnestrandTerese StenforsCarl SavageMaria ReiniusHenna HassonPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
The research team included members with formal experiences as researchers and members with lived experiences of being a patient or informal caregiver. One patient innovator coauthored this paper and contributed to all aspects of the research, including the design of the study; production of data (as interviewee); interpretation of findings; and drafting the manuscript.