Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study.
Betül SözeriNihal ŞahinCeyhun AçarıPinar Ozge Avar AydınOzge BabaEsra BağlanSevcan BakkaloğluSibel BakırcıYelda BilginerBurcu Yücel BozkayaŞengül ÇağlayanMustafa ÇakanFigen ÇakmakTaner CoşkunerFerhat DemirFatma Gül DemirkanŞeyda DoğantanHatice Adıgüzel DündarEmine Duygu ErsözlüSercan GücenmezOğuz GürlerRana İşgüderAdem KüçükMukaddes KalyoncuLevent KılıçSara Şebnem KılıçHakan KısaoğluAyşenur Paç KısaarslanZehra KızıldağDuygu KurtuluşSemanur ÖzdelKübra ÖztürkPelin ŞenolAyşe TanatarSema Nur TaşkınFatma Tuncer KuruSerkan TürkuçarKadir UluErbil ÜnsalAyten YazıcıDeniz Gezgin YıldırımSelçuk YükselÖzgür KasapçopurSeza ÖzenNuray Aktay AyazHafize Emine SönmezPublished in: Pediatric rheumatology online journal (2024)
The study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.
Keyphrases
- juvenile idiopathic arthritis
- quality improvement
- end stage renal disease
- healthcare
- ejection fraction
- chronic kidney disease
- palliative care
- newly diagnosed
- prognostic factors
- peritoneal dialysis
- young adults
- type diabetes
- rheumatoid arthritis
- physical activity
- metabolic syndrome
- pain management
- disease activity
- patient reported outcomes
- affordable care act
- weight loss
- early life
- glycemic control