Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health.
Elizabeth M GoldbergRochelle K RosenDon S DizonKirsten J LangdonNatalie M DavoodiTyler B WrayNicole R NugentShira I DunsigerMegan E RanneyPublished in: Journal of medical Internet research (2022)
Social media integration into research has increased, and 92% of American social media participants state they would share their data with researchers. Yet, the potential of these data to transform health outcomes has not been fully realized, and the way clinical research is performed has been held back. The use of these technologies in research is dependent on the investigators' awareness of their potential and their ability to innovate within regulatory and institutional guidelines. The Brown-Lifespan Center for Digital Health has launched an initiative to address these challenges and provide a helpful framework to expand social media use in clinical research.