Assessing the Appropriateness of the EQ-5D for Duchenne Muscular Dystrophy: A Patient-Centered Study.
Norah L CrossnohereRyan FischerAndrew LloydLisa A ProsserJohn F P BridgesPublished in: Medical decision making : an international journal of the Society for Medical Decision Making (2021)
Contrary to anecdotal concerns, we found support for the appropriateness of EQ-5D to assess health status in Duchenne. While other measures may be more sensitive to specific outcomes in Duchenne, there may be some value in results using the EQ-5D measure.