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A Multi-Modal Family Peer Support-Based Program to Improve Quality of Life among Pediatric Brain Tumor Patients: A Mixed-Methods Pilot Study.

Justin G WilfordRuth McCartyLilibeth TornoGrace MucciNadia Torres-EatonViolet ShenWilliam Loudon
Published in: Children (Basel, Switzerland) (2020)
This feasibility study demonstrated that a multimodal peer support-based intervention that included in-person and online group interaction is feasible and acceptable to parents of pediatric brain tumor patients. Further research on interventions for caregivers that include in-person and online group-based peer support is warranted, with the goal of exploring similar outcomes in other childhood cancer diagnoses.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • childhood cancer
  • prognostic factors
  • healthcare
  • clinical trial
  • study protocol
  • patient reported