Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study.
Anjelica C SaulsberryJason R HodgesAudrey ColeJerlym S PorterJane Silva HankinsPublished in: JMIR pediatrics and parenting (2020)
Improvement in disease knowledge in adolescence is critical to ensure the youth's ability to self-care during the period of transition to adult care. Despite low participation, the cumulative exposure to the STEP program suggested greater promotion of disease knowledge among adolescents with SCD before transfer to adult care.