An observational study of pediatric healthcare burden in Angelman syndrome: results from a real-world study.

Nasreen KhanRaquel CaboWen-Hann TanRegina TayagLynne M Bird

Published in: Orphanet journal of rare diseases (2019)

The study highlights the significant healthcare burden among individuals with AS. Future studies that estimate cost and caregiver burden associated with AS are needed to assess the lifelong economic impact of AS on families and healthcare system.

Keyphrases

healthcare
risk factors
young adults
case report
social media
health information