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Lessons learned in measuring patient engagement in a Canada-wide childhood disability network.

Tatiana OgourtsovaMiriam GonzalezAlix ZerboFrank GavinKeiko ShikakoJonathan WeissAnnette Majnemer
Published in: Research involvement and engagement (2024)
Our 3-years patient engagement evaluation journey demonstrated a consistent and high level of satisfaction with patient engagement within the Network and identified advantages, barriers, facilitators, and potential solutions. Improvements were observed in members' comfort in sharing their views and perspectives, along with an increase in critical reflective trust. These findings underscore the Network's commitment to enhancing patient engagement and provide valuable insights for continued improvement and optimization of collaborative efforts.
Keyphrases
  • social media
  • case report
  • health information
  • healthcare
  • quality improvement
  • risk assessment
  • young adults
  • network analysis
  • childhood cancer
  • cell fate
  • clinical evaluation