Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study.

Catherine MosesKaitlyn Flegg Helen Dimaras

Published in: Health expectations : an international journal of public participation in health care and health policy (2020)

Patients view their experiential knowledge of retinoblastoma as valuable to improving care and directing research. There is a unique role for research engagement in meeting the educational needs of patients.

Keyphrases

end stage renal disease
healthcare
ejection fraction
chronic kidney disease
mental health
patient reported
health insurance