The Reliability of Patient Self-reported Utilization in an Inflammatory Bowel Diseases Learning Health System.
Welmoed Kirsten van DeenNoah FreundlichMichelle H KwonDevin B PatelDamara J CrateRidhima OberaiSamir A ShahCaroline HwangS Alandra WeaverCorey A SiegelGil Y MelmedPublished in: Crohn's & colitis 360 (2021)
Self-reported IBD-related ED visits, hospitalizations, and CT scans are reported with high sensitivity and accuracy. Medication use, and in particular opioid use, is less reliably reported. Vaccination self-report is likely more accurate than EHR data as many vaccinations are not accurately registered.