Primary caregiver decision-making in hematopoietic cell transplantation and gene therapy for sickle cell disease.
Cynthia B SinhaNitya BakshiDiana RossGeorge LoewensteinLakshmanan KrishnamurtiPublished in: Pediatric blood & cancer (2020)
Primary caregivers of children with SCD learn about HCT through social networks, social and news media, and explore HCT as a means to prevent SCD complications and help their child live a normal life.