Development and validation of a patient-reported outcome in systemic sclerosis: the Hand scleroDerma lived Experience (HAnDE) scale.

Jordan SibeoniB DunoguéA DupontD HaiddarN BenmostefaB FalissardL MouthonA Révah-LevyL Verneuil

Published in: The British journal of dermatology (2021)

We propose, for future trials and clinical practice in SSc, a new PRO, the HAnDE scale, that assesses all the dimensions - functional, aesthetic, relational, existential and emotional - of the lived experience of hand involvement in SSc.

Keyphrases

systemic sclerosis
patient reported outcomes
interstitial lung disease
clinical practice
current status
anti inflammatory
rheumatoid arthritis
idiopathic pulmonary fibrosis