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Interrogating the promise of technology in epilepsy care: systematic, hermeneutic review.

Chrysanthi PapoutsiChristian D E CollinsAlexandra ChristopherSara E ShawTrisha Greenhalgh
Published in: Sociology of health & illness (2021)
Technology development is gathering pace in epilepsy with seizure detection devices promising to transform self-care and service provision. However, such accounts often neglect the uncertainties, displacements and responsibilities that technology-supported care generates. This review brings together a heterogeneous literature, identified through systematic searches in 8 databases and snowball searching, to interrogate how technology becomes positioned in epilepsy care. We took a hermeneutic approach in our analysis of the 206 included articles, which resulted in the development of a conceptual framework surfacing the underlying logics by which technology-supported epilepsy care is organised. Each of these logics enacts different techno-scientific futures and carries specific assumptions about how (often imagined) 'users' and their bodies become co-constituted. Our review shows that studies in this area remain primarily deterministic and technology-focused. Few draw phenomenological insights on lived experiences with epilepsy or use social theory to problematise the role of technology. We propose future directions for sociotechnical, theory-driven studies of technology in epilepsy care and offer a framework transferable across other long-term conditions.
Keyphrases
  • healthcare
  • palliative care
  • quality improvement
  • mental health
  • pain management
  • systematic review
  • affordable care act
  • temporal lobe epilepsy
  • machine learning
  • health insurance
  • loop mediated isothermal amplification