Therapeutic recreation camps for youth with childhood-onset systemic lupus erythematosus: perceived psychosocial benefits.
Cristina SaezLorien NassiTracey WrightUna E MakrisJustin KramerBonnie L BermasE Blair SolowNicole BitencourtPublished in: Pediatric rheumatology online journal (2022)
In this qualitative study, in which cSLE patients and their parents reflected on their experiences with therapeutic recreation camps, we found several perceived benefits impacting the patient and parent experience. Participants expressed a desire for more educational opportunities that could contribute to their successful transition from pediatric to adult care. Further studies are needed to demonstrate the effects of therapeutic recreation camps on the psychosocial health of this population.
Keyphrases
- mental health
- systemic lupus erythematosus
- healthcare
- physical activity
- end stage renal disease
- depressive symptoms
- ejection fraction
- newly diagnosed
- public health
- chronic kidney disease
- childhood cancer
- disease activity
- young adults
- case report
- rheumatoid arthritis
- risk assessment
- climate change
- pain management
- case control
- patient reported
- social media
- human health
- health promotion