Quality of life in people with epidermolysis bullosa: a systematic review.
Camille TogoA P C ZidorioVivian Siqueira Santos GonçalvesLynne D HubbardKênia Mara Baiocchi de CarvalhoEliane S DutraPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)
QoL is more affected in people who have RDEB and JEB. Regarding sex and age, women and children need special care in their monitoring. It is necessary that guidelines on pain management be more disseminated and put into practice. Future studies should use standardized specific instruments to assess the QoL in EB individuals, while considering the particularities of the different age groups.