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The contribution of online peer-to-peer communication among patients with adrenal disease to patient-centered care.

Dirkjan KauwHan Repping-WutsAlida NoordzijNike StikkelbroeckAdrianus R M M HermusMarjan J Meinders
Published in: Journal of medical Internet research (2015)
On an online patient forum for Cushing's syndrome and Addison's disease, patients appear to primarily gain knowledge and, to a lesser extent, emotional support from their peers. This experience-based knowledge has become a very important information source. As such, patients can make a substantial contribution to the creation of patient-centered care if this knowledge is integrated into the care provided by health care professionals.
Keyphrases
  • healthcare
  • end stage renal disease
  • palliative care
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • peritoneal dialysis
  • prognostic factors
  • social media
  • patient reported outcomes
  • health insurance