Patient-reported outcomes and their relation with iron parameters in HFE haemochromatosis during maintenance therapy: A prospective cohort study.

Nicolas BelhommeJeff MorcetAlain LescoatFrançois RobinYves DeugnierEdouard Bardou-JacquetFabrice Lainé

Published in: Liver international : official journal of the International Association for the Study of the Liver (2022)

Fatigue was independent from iron parameters. The main factor impacting quality of life was joint pain, which was more severe in patients with low TS values. Then, a more precise monitoring of TS should be proposed during haemochromatosis maintenance therapy; while less stringent monitoring of serum ferritin levels could be tested.

Keyphrases

patient reported outcomes
iron deficiency
pain management
early onset
spinal cord injury
cell therapy