An Application of Evidence-Based Approaches to Engage Young People in the Design of a Global Mental Health Databank.
Augustina Mensa-KwaoLakshmi NeelakantanJennifer VellozaEmily BamptonSwetha RanganathanRefiloe SibisiJoshua BowesLilliana BuonasorteDamian Omari JumaManasa VeluvaliMegan DoerrTamsin Jane FordChristine SuverCarly Martennull nullPamela Y CollinsPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
There was substantial patient and public involvement in this study. This paper reports findings on youth engagement conducted with 35 young people from India, South Africa and the United Kingdom, all of whom had lived experience of mental health challenges. Youth engagement in the MindKind study was coordinated and led by three professional youth advisors (PYAs) in these contexts, who were also young people with lived experience of mental health challenges. Each of the three study sites embedded a full-time, community-based PYA within their study team to inform all aspects of the research project, including the development of informational materials and the facilitation of Young People's Advisory Group (YPAG) sessions referenced in this paper. Each PYA also consulted with a site-specific YPAG that met bi-monthly throughout the project, shaping the formation of study materials and serving as a test group in both the quantitative and qualitative studies. Youth participants in this study also contributed extensively, engaging in data collection and manuscript writing. The following youth advisory panels members (J.B., L.B., D.O.J., M.V.) and all PYAs (E.B., S.R., R.S.) in the MindKind study contributed to the writing of this manuscript and are acknowledged as co-authors.