Five paediatric mycosis fungoides cases and our approach to provide age-appropriate information and psychological support.
Veronica MelchiondaEleni IeremiaRubeta N MatinTess McPhersonPublished in: Clinical and experimental dermatology (2024)
Cutaneous lymphoproliferative diseases in childhood are rare and they are clinically and pathologically heterogeneous, which makes their diagnosis challenging. Although there is limited long-term data and guidance on management, evidence suggests these to be different conditions from cutaneous lymphoma in adults, highlighting the need for age-appropriate patient information. We present clinical outcomes for our paediatric cohort of 5 patients with mycosis fungoides, emphasising that despite diagnostic delays, mycosis fungoides in this age group tends to yield a good prognosis. It remains uncommon to provide clinical expertise together with psychological support in a dermatology paediatric. Here, we provide our experience in offering this combined service. In conjunction with these patients, we have co-produced an accessible patient information leaflet targeted at a younger audience for support and to clarify potential misconceptions from a diagnosis of cutaneous lymphoma.
Keyphrases
- intensive care unit
- emergency department
- end stage renal disease
- diffuse large b cell lymphoma
- case report
- health information
- ejection fraction
- newly diagnosed
- chronic kidney disease
- healthcare
- mental health
- epstein barr virus
- mitral valve
- peritoneal dialysis
- prognostic factors
- electronic health record
- drug delivery
- heart failure
- patient reported outcomes
- left ventricular
- risk assessment
- deep learning
- atrial fibrillation
- data analysis