In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders.
Catherine Arnott SmithMichelle M KellyPublished in: Journal of participatory medicine (2022)
Providing patients and, in the case of pediatrics, caregivers with access to medical records via patient portals increases the flow of information and, in turn, their ability to participate in the discourse of their care. Parents in this study demonstrated not only that they act as monitors and guardians of their children's health but also that they are observers of the clinical processes taking place in the hospital and at their child's bedside. This includes the clinical documentation process, from the creation of notes to the reading and sharing of the notes. Parents acknowledge not only the importance of notes in the clinicians' workflow but also their collaboration with providers as part of the health care team.
Keyphrases
- healthcare
- palliative care
- health information
- mental health
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- social media
- public health
- young adults
- electronic health record
- quality improvement
- prognostic factors
- emergency department
- adverse drug
- climate change
- living cells
- health promotion
- patient reported