How is the patient perspective captured in ANCA-associated vasculitis research? An integrative review.

Annika GranathSusanne PetterssonIva GunnarssonElisabet Welin Karuna Dahlberg

Published in: Rheumatology advances in practice (2023)

The patient perspective was captured predominantly with generic PROMs and occasionally with a qualitative approach. AVV is a lifelong disease, and the results from this review show that not all aspects of importance to patients are covered with the PROMs used in research. Future studies should include the areas that are the most important for patients.

Keyphrases

patient reported outcomes
end stage renal disease
newly diagnosed
chronic kidney disease
prognostic factors
case report
african american