Priority setting for children and young people with chronic conditions and disabilities.
Amy Louise Finlay-JonesRebecca SampsonAsha ParkinsonKarina PrenticeKeely BebbingtonClaire TreadgoldBelinda FrankAmber BatesJacinta FreemanJayden LucasJulie DartElizabeth DavisRaghu LingamAnne McKenziePublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
This study was guided by three Advisory Groups, comprising (1) young people living with CCD; (2) parents and caregivers of a child or young person with CCD and (3) professionals working with children and young people with CCD. These groups met several times across the course of the project and provided input into study aims, materials, methods and data interpretation and reporting. Additionally, the lead author and seven members of the author group have lived and experienced CCD.