Constructing Health State Descriptions for Low-Risk Thyroid Cancer: Stakeholder Engagement and Formative Qualitative Research.
Erin G RothJustin KimJulia F SlejkoC Daniel MullinsJennifer L DoyleDavid L LevittMiguel MelendezKyle J FletkeYinin HuPublished in: The patient (2022)
Stakeholder engagement was critical to being responsive to feedback as the iterations were refined and presented. Continuous engagement and consultation with multiple sources strengthened the HSDs. A secondary outcome from this project is that stakeholders expressed interest in adapting the HSDs into decision aids for people newly diagnosed with low-risk thyroid cancer.