Privacy practices using genetic data from cell-free DNA aneuploidy screening.
Christian M ParobekMelissa L RussoAdam K LewkowitzPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2021)
Most laboratories allowed for prolonged use and sharing of cfDNA data, demonstrated incomplete adherence to ASHG privacy recommendations, and provided consents written in college-level language. Laboratories should revise their consent forms, and providers should help patients understand these forms.
Keyphrases
- big data
- health information
- end stage renal disease
- electronic health record
- ejection fraction
- newly diagnosed
- chronic kidney disease
- primary care
- healthcare
- peritoneal dialysis
- social media
- autism spectrum disorder
- prognostic factors
- artificial intelligence
- genome wide
- clinical practice
- patient reported outcomes
- dna methylation