UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan.
Jean BousquetBoleslaw SamolinskiIgor KaidashevMarcus MaurerNicolas RocheBernardo Sousa-PintoAndrii KurchenkoRoman StepanenkoVladyslav TsarykLudger KlimekMaria Teresa VenturaAnna BedbrookWienczyslawa CzarlewskiYuliia LysanetsMaciej KupczykŁukasz SkolimowskiMarek KulusStefano R Del GiaccoMarkus OllertJudith Garcia-AymerichCarlos Robalo CordeiroAyşe Arzu YorgancioğluChristoph SchlapbachRita AmaralCristina BonagliaIsabelle BosséRosalba BuquicchioDemetrios ChristouGalyna FedorukPietro FontanesiBilun GemiciogluAntonio Francesco Maria GiulianoPaolo LeporeAlla NakonechnaSophia NeisingerAna Margarida PereiraAiste RamanauskaiteFilip RaciborskiBrigita SitkauskieneOksana SokhatskaViktor StepanenkoKatarina StevanovicOrysya SyzonVioleta KvedarieneGovert de VriesMichiel van EerdArunas ValiulisJoao A FonsecaJosep M AntoTari HaahtelaHolger SchünemannTorsten ZuberbierPublished in: Allergy (2023)
Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK-air® (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE® (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK-air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID-developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)-is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.
Keyphrases
- allergic rhinitis
- primary care
- emergency department
- chronic obstructive pulmonary disease
- ejection fraction
- lung function
- healthcare
- newly diagnosed
- mental health
- autism spectrum disorder
- prognostic factors
- public health
- cystic fibrosis
- physical activity
- high resolution
- mass spectrometry
- case report
- patient reported outcomes
- early onset
- risk assessment
- deep learning
- big data
- quality improvement
- climate change