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The knowledge and reuse practices of researchers utilising government health information assets, Victoria, Australia, 2008-2020.

Merilyn F RileyMonique F KilkennyMonique F KilkennySandra G Leggat
Published in: PloS one (2024)
Confidentiality/privacy processes and quality control activities undertaken by data custodians were well-regarded. Many respondents included data linkage to additional government datasets in their research. Ease of data access was variable. Some documentation types were well provided and used, but improvement is required for the provision of data quality statements and limitations documentation. Provision of information on participants' informed consent in a dataset is required.
Keyphrases
  • electronic health record
  • health information
  • big data
  • quality control
  • healthcare
  • palliative care
  • gene expression
  • hepatitis c virus
  • dna methylation
  • single cell