Clinical severity measures and quality-of-life burden in patients with mycosis fungoides and Sézary syndrome: comparison of generic and dermatology-specific instruments.
Christina M HerbosaYevgeniy R SemenovA R RosenbergN Mehta-ShahA C MusiekPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2020)
MF/SS have a significant impact on multiple domains of patients' QoL, including social, emotional and physical functioning. Current clinical measures do not adequately address QoL outcomes, underscoring the need for integrating formal disease-specific QoL assessment into the routine evaluation of MF/SS patients.