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Research participants' experiences with return of genetic research results and preferences for web-based alternatives.

Jill B GaieskiLinda Patrick-MillerBrian L EglestonKara N MaxwellSarah WalserLaura DiGiovanniJamie BrowerDominique FetzerAmanda GanzakDanielle McKennaJessica M LongJacquelyn PowersJill E StopferKatherine L NathansonSusan M DomchekAngela R Bradbury
Published in: Molecular genetics & genomic medicine (2019)
Most participants receiving genetic research results report high satisfaction with telephone genetic counseling, but some may be willing to consider self-directed web alternatives for both predisclosure genetic education and return of results.
Keyphrases
  • genome wide
  • copy number
  • healthcare
  • mental health
  • dna methylation
  • hepatitis c virus