Enteral nutrition support for infants with pulmonary hypoplasia: A qualitative evaluation of caregiver and provider perspectives.
Sourav K BoseBrandon M WhiteRobin C CookLisa M HerkertSabrina J FlohrHannah L WilliamsAnnie MarkovitsShiva TeerdhalaWilliam H PeranteauHolly L HedrickPublished in: Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition (2022)
Among children with PH, the caregiver-provider relationship during the perinatal and NICU course is critical to promoting caregiver adaptation to the needs of the child. Ongoing considerations to support resource alignment and transition to a stable feeding regimen may facilitate caregiver adjustment to a "new normal," culminating in successful growth and/or weaning. These findings will inform interventions focused on training curricula, discharge planning, and the provision of follow-up in the context of an integrated care program for PH.