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A qualitative study on aspects of consent for genomic research in communities with low literacy.

Daima BukiniColumba MbekengaSiana NkyaLisa PurvisSheryl McCurdyMichael ParkerJulie Makani
Published in: BMC medical ethics (2020)
The quality of the consenting process of participants will be influence by a number of factors. The type of research consented for, where the research will be implemented and who are the potential study participants are amongst the factors that need to be assessed during the consenting. Measures to improve participants' comprehension need to be developed when consenting participants with low literacy level in genomic studies.
Keyphrases
  • copy number
  • health information
  • healthcare
  • gene expression
  • dna methylation
  • climate change