Parents' and adolescents' perspectives and understanding of information about childhood cancer precision medicine.
Jessica M GereisKate HetheringtonEden G RobertsonRebecca DalyMark W DonoghoeDavid S ZieglerGlenn M MarshallLoretta M S LauJonathan Michael MarronClaire E WakefieldPublished in: Cancer (2023)
Precision medicine is projected to become part of the standard of care for children with cancer. Precision medicine aims to give the right treatment to the right patient and involves several complex techniques, many of which may be challenging to understand. Our study analyzed questionnaire and interview data from parents and adolescent patients enrolled in an Australian precision medicine trial. Findings revealed gaps in families' understanding of childhood cancer precision medicine. Drawing on parents' suggestions and the literature, we make brief recommendations about improving information provision to families, such as through targeted information resources.
Keyphrases
- childhood cancer
- young adults
- palliative care
- health information
- end stage renal disease
- healthcare
- ejection fraction
- newly diagnosed
- systematic review
- study protocol
- climate change
- prognostic factors
- quality improvement
- machine learning
- single cell
- squamous cell carcinoma
- mental health
- drug delivery
- papillary thyroid
- affordable care act
- chronic pain
- replacement therapy
- health insurance