Osteogenesis Imperfecta: A study of the patient journey in 13 European countries.

Valerie Cormier-DaireValerie Cormier-DaireScott GilbertSean O'MalleyRichard Keen

Published in: Orphanet journal of rare diseases (2024)

There is an urgent need for increased awareness about OI and its wide range of symptoms. In particular, there is a need for consensus guidelines outlining the optimum care throughout the duration of the OI patient's life.

Keyphrases

case report
healthcare
clinical practice
palliative care
quality improvement
pain management
sleep quality
health insurance
affordable care act
bone regeneration