Patient-reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician-graded adverse events-A multicenter study using the FACE-Q Craniofacial module.
Michèle MorfouaceMarinka L F HolReineke A SchootOlga SlaterDaniel J IndelicatoFrédéric KolbLudwig E SmeeleJohannes H M MerksCharlene RaeHeleen Maurice-StamAnne F KlassenMartha A GrootenhuisPublished in: Cancer medicine (2022)
Physician-graded AEs are not sufficient to provide tailored care for HNMRS survivors. Findings from this study highlight the importance of incorporating patient-reported outcome measures in survivorship follow-up.