Factors of family impact in a Swedish-German cohort of children born with esophageal atresia.
Michaela Dellenmark-BlomKate AbrahamssonJens DingemannStefanie WittCarmen DingemannLinus JönssonVladimir GatzinskyMonika BullingerBenno M UreJohn E ChaplinJulia H QuitmannPublished in: Orphanet journal of rare diseases (2022)
Family functioning may be a contributing factor to the maintenance of child health. The study findings suggest multifactorial explanations to family impact in children with EA, which are essential when optimizing the support to these families in clinical and psychosocial practice. Future research should explore experiences of family impact from all family members' perspectives and multicenter studies are warranted to understand better the effectiveness of psychosocial-educational interventions to families of children with EA.