Empowering rare disease patients through patient education: the new BehçeTalk programme.
D MarinelloA Del BiancoA ManzoM MoscaRosaria TalaricoPublished in: BMC rheumatology (2022)
The therapeutical management of BD is often challenging and frequently includes off-label treatments. Considering the specificities of BD, providing a specific education on the disease to patients will lead to empower them in being part of the decision-making processes, in the self-management and in improving their quality of life.