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Empowering rare disease patients through patient education: the new BehçeTalk programme.

D MarinelloA Del BiancoA ManzoM MoscaRosaria Talarico
Published in: BMC rheumatology (2022)
The therapeutical management of BD is often challenging and frequently includes off-label treatments. Considering the specificities of BD, providing a specific education on the disease to patients will lead to empower them in being part of the decision-making processes, in the self-management and in improving their quality of life.
Keyphrases
  • end stage renal disease
  • newly diagnosed
  • chronic kidney disease
  • healthcare
  • decision making
  • peritoneal dialysis
  • prognostic factors
  • clinical trial
  • case report
  • quality improvement