Understanding care when cure is not likely for young adults who face cancer: a realist analysis of data from patients, families and healthcare professionals.

Charlotte KentenNothando NgwenyaFaith GibsonMary FlatleyLouise JonesSusie PearceGeoff WongKath M BlackSue HaigRachael HoughAdam HurlowL Caroline StirlingRachel M TaylorAdrian TookmanJeremy S Whelan

Published in: BMJ open (2019)

Current care towards end of life for young adults with cancer and their families does not meet needs and expectations. We identified challenges specific to those aged 16-40 years. The burden that care delivery imposes on healthcare professionals must be recognised. These findings can inform recommendations for measures to be incorporated into services.

Keyphrases

healthcare
palliative care
young adults
papillary thyroid
quality improvement
end stage renal disease
affordable care act
squamous cell
newly diagnosed
primary care
prognostic factors
peritoneal dialysis
childhood cancer
electronic health record
clinical practice
lymph node metastasis
artificial intelligence