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Treatment-related outcome from patient report outcome (PRO) of children with severe and moderate hemophilia A in China: An analysis report of registration data from patient organization "hemophilia home care center".

Tao GuanDi AiNan ZhaoGuoqing LiuWanru YaoZhenping ChenZhengping LiYaohan ZhouRunhui Wu
Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
The high rate of drop-out of school and disability still present a huge gap to meet the needs in China. It is necessary to improve the level of medical accessibility and medicine affordability and strengthen the patient/parent's education in China.
Keyphrases
  • case report
  • healthcare
  • physical activity
  • multiple sclerosis
  • mental health
  • young adults
  • machine learning
  • quality improvement
  • drug induced