Treatment-related outcome from patient report outcome (PRO) of children with severe and moderate hemophilia A in China: An analysis report of registration data from patient organization "hemophilia home care center".
Tao GuanDi AiNan ZhaoGuoqing LiuWanru YaoZhenping ChenZhengping LiYaohan ZhouRunhui WuPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
The high rate of drop-out of school and disability still present a huge gap to meet the needs in China. It is necessary to improve the level of medical accessibility and medicine affordability and strengthen the patient/parent's education in China.