A framework to make PROMs relevant to patients: qualitative study of communication preferences of PROMs.
Cara H LaiLauren M ShapiroDerek F AmanatullahLoretta B ChouMichael J GardnerSerena S HuMarc R SafranRobin Neil KamalPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
Patient attitudes toward the use and communication of PROMs start with the incorporation of patient beliefs, which can facilitate or act as a barrier to engagement. Patients should ideally believe that PROMs are an accurate reflection of personal health state before incorporation into care. Clinicians should endeavor to communicate the purpose of a chosen PROM in line with a patient's unique needs and what they feel is most relevant to their own care. Aspects of PROMs results which may be helpful to address include providing context for what scores mean and how they are calculated, and using scores as a way to weigh risks and benefits of treatment and tracking progress over time. Future research can focus on the effect of communication strategies on patient outcomes and engagement in care.